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Getting diagnosed with Crohn’s disease I was taken to the A&E unit I was there for a long time like 10 hours and I don’t like loud noise and people close to me I was unable to go into a quiet room I was prevented access with my autism I am sensory so it was very hard for me to adjust.
Many teachers assumed my kids were lazy because they couldn't understand why such significant gaps existed between their cognitive abilities and performance. They didn't understand that they were working much harder than other children to keep up. In addition, many teachers didn't relate to them favorably because they assumed they were not trying. My kids were also repeatedly made fun of or bullied due to their low academic performance and neurodivergence.
Through personal encounters with my colleagues, teaching groups of students and healthcare professionals, speaking, writing and posting content in various forums, and participating in podcasts and panel discussions (such as the ones Carole Jean is hosting this month), my main aim is to promote empathy by telling my own story and weaving it into the stories of patients so that others can get a feel for what it’s like.
Prior to doing the work I do now, I worked in a lot of public spaces and whilst I loved the work I did in those spaces, I saw just how many barriers there were for autistic people being able to access them. I don’t like the injustice of these spaces being there and not being accessible, so I wanted to change that.
Making accommodations should be part and parcel of continuous improvement. If a significant proportion of your community tells you your processes aren’t working for them, you should adjust your processes.
Accessibility is not just for people with disabilities, yes, it has become synonyms with people with disabilities due to the fact, we are not provided access more than any other diverse group, but it is important to realize it is about providing access and giving access in ways the individual needs it, and not how you assume they need it. Listen to your disabled/ neurodiverse employees, and ultimately listen to disabled and neurodiverse voices and people.
Some autistic people may need specific instructions broken down into manageable chunks, and it can also be helpful to confirm expectations in writing. When interviewing someone, you may want to consider presenting the questions one at a time instead of asking a series of questions in one go. Breaking down information into manageable chunks, in fact, makes information more accessible for everyone.
When it comes to Neuro-Inclusive employee feedback having a conversation that includes both sides of the table, variations in neurotype communication styles, along with these top tips from Neuro-Inclusive Experts in the Workplace who also happen to be Autistic, ADHD, and Dyslexic will drastically improve your feedback outcomes.
Holiday Boundary setting tips to ensure your needs are being met. The basis of ND Burnout is when our needs and sensory profile needs go consistently un-met over a long period of time. The first step is to identify your biggest need and sensory profile need during the holiday season.
A function label perpetuated in the formal assessment process and in any form referring to an autistic is one of the biggest contributors to ND Burnout and the Chronic Cycle Burnout Loop.
One of the areas that many encounter along their boundary setting journey is fear. Ali and I mentioned this in the video above and we have both experienced these feelings of fear when setting boundaries as we were first starting out. Heck, I still come to places in my life where fear enters and I have to take a deep breath and remind myself it is a useful feeling that brings my attention to an area I have not yet uncovered in my awareness (it still feels uncomfortable to feel them but now they aren't scary.)
July has always been the month that I find restoration and slow down. Not sure if it is because of the heat and my POTS (Postural Orthostatic Tachycardia Syndrome), the realization that the year is half way over and I have done a good bit and need a break, that I have 6 months left to get things accomplished and need time to organize or just my natural slowing down and reflecting time. I am on vacation this month playing, relaxing, creating, organizing my closet, de-furring my dog who ...
June 2022 is Sizzlin' Sexy Summer Series- Autistic Sex. Join in the conversations this month in live community events and workshops with special guests which include: Michael John Carley, Candice Christiansen, Amy Gravino and MORE. Autistic Sex is unique to our neurotype experience from sexual identification be it bi, pan, asexual, non-binary and beyond and our sensory and processing needs in sexual intimacy with ourselves and with others. Let's talk about it and explore what sex is to US. We are wonderfully wired, NeuroDistinct and how we have, don't have and enjoy or find sexual pleasure varies. ALL Autistic ADHD adults are invited to this conversation.
My greatest hope is that, by inviting others to follow alongside me on this journey, I may be able to offer some insight into how autism can present, hiding underneath the surface of mental illness or masking.
I was late diagnosed at nearly 31 and I want people to understand that this does not make me any less autistic.
By the time I read about autism in women, I was 30 years old, facing extreme autistic burnout, and seeking a way to end my suffering.
I began advocating for myself because I got tired of the society we live in where Autistic people are made to feel that something is constantly wrong with us.
“At times it is certainly tempting to put on that fake YouTube energy and pretend that everything is sunshine and rainbows. But if I did that, if I didn't talk about any struggles I'm going through, I would be sugar-coating what this condition is and what it has to offer.”
I still share my perspectives from my own experiences, but rather than having a unidirectional informational exchange (us autistics telling the world what is important to us and why), I am appealing to the human nature of needing to feel heard and validated and listening to others’ perceptions.
Welcome to May! I hope that you found rest, joy, and a place to be seen, heard, understood and accepted during the month of April. Community is key and one of the most critical parts to our overall health and well being as adult autistics. If you are looking for resources to share with others as to why online community is so important to us check out this article and share with others. #ShineALight In the most recent Autistic Advocate Spotlight out today, meet Dr. Scott ...
No one seems to ‘get it’. Friends and family think you just need to push through or "self-care" more. Internally, so many people in late identified life (me included) feel broken, ashamed or like they are failing or have never reached their full potential, when all along they've had a brain and sensory system that is different from the masses. It can take a lot of strength to keep going.
(It was years before I realized I had been on The Chronic Cycle Burnout Loop)
Living Burnout, Shutdown and Meltdown FREE for going on 4 years now has taught me more than I ever dreamed possible and the most powerful experience in Restoration has been regaining skills and abilities I thought were lost permanently to Burnout decades ago.
But that's not all - don't miss your one time SPECIAL BUNDLE offer and upgrade to include the Companion Workbook Collection and get the book for only $2.99!